by Tom Rademacher, Veteran Grand Rapids Press columnist and long-time Michigan Blood donor
Their first-born survived just 21 months.
They’d watched him suffer and die. And now, Libby Marsh was giving birth to a second child, a baby girl who also would be challenged with the same disease that claimed the life of her precious Taylor.
A rare and usually fatal condition known as Krabbes Disease was the insidious culprit in both cases, something that affects just one in every 100,000 or so births. A degenerative disorder, it affects the protective coating of the brain and nervous system. Its infant victims often suffer and succumb from a variety of symptoms that can include unexplained crying, extreme irritability, a decline in alertness, developmental disabilities, muscle spasms, loss of body control and frequent vomiting.
And now, Libby’s crystal ball foreshadowed the possibility of all those things occurring a second time.